The Chromosome 9pminus Network is a continually growing non-profit organization which welcomes you to learn, share, support, and connect. Our Network is solely comprised of parents and caregivers of individuals worldwide diagnosed with Chromosome 9p Deletion Syndrome, also known as "9pminus", "9p-," "Alfi's Syndrome," and/or "Monosomy 9p". For over 25 years, our Network families have been raising awareness by exchanging information, discussing challenges/achievements, and getting moral support for their 9pminus family member. This syndrome is an extremely rare chromosome anomaly, so many families with a loved one diagnosed with a 9p Deletion are left feeling isolated and yearning for information. Thanks to this Network, families now have a place to turn.
Our Network strives to educate, foster hope, and develop a greater understanding amongst its members and the community at large. Whether you are already a Network family, a newly diagnosed family or someone who has been touched by a special person with 9pminus, thank you for taking the time to view this website!
Mission The Chromosome 9pminus Network is a nonprofit, parent-based support group with a mission to improve the lives of families … More »
Omar S. Alfi, M.D. began his medical career as a pediatrician in Cairo, Egypt. In 1954, he was named as a Fulbright Fellow with the Naval … More »
The Chromosome 9p-minus Network is extremely valuable to all families affected by 9p Deletion Syndrome--newly diagnosed or long-standing … More »