For International Families

The Chromosome 9pminus Network is a non-profit organization based in the United States, but families from all over the world have joined the Network. In fact, our Network families represent over 20 countries! Most communications are in English, but the Network is striving to build a team of bilingual translators to assist in disseminating information to all affected by 9p Deletion Syndrome. If you are an enrolled international family and would like to volunteer as a bilingual translator, please email your interest to help to

In addition, if your child or loved one has been diagnosed with 9p Deletion Syndrome and you live outside of the United States, we encourage you to contact the Network at A member of the Membership Services Committee will return your email in a timely manner.