Drum roll please…..Ta da! Welcome to the newly updated Chromosome 9pminus Network website! After months of work and careful planning, the Network’s Board of Directors is happy to “go live” with a webpage that we hope you find to be more informational, more attractive, and more user-friendly.
Please take some time and look over the information contained within 9pminus.org. Here are a few of the highlights:
Dr. Alfi graciously wrote a segment for our tribute to him and his work for 9p Deletions.
The Membership Services Committee now has an Enrollment Form that allows for seamless enrollment of new members.
Unique’s Disorder leaflets are readily available under “For Families.” These are excellent sources of information to share with teachers, therapists, and physicians. A special thanks to the staff at Unique for their permission to provide a link on our website!
“About 9pminus Syndrome” contains a document entitled “What is 9pminus Syndrome?” It was created within our BoD as an informal document containing information explaining 9p Deletions in further detail. We hope you find this helpful! [Read more…]